Informativa sulla Privacy per CURIA App

Utilizzo della nostra applicazione mobile

I. Informazioni sulla raccolta dei dati personali
(1) We, Innoplexus AG ) (“Innoplexus“), provide you with a mobile app (“CURIA” or the “Service“) that you can download to your mobile device. We respect your privacy and are committed to protect your personal data which you share with us. In the following, we provide information about the collection of personal data when using CURIA, manner in which we may use such personal data and your rights with respect to personal data you provide to us. Personal data includes all data that can be personally related to you, e.g. name, address, email addresses, user behavior, etc.

(2) The person responsible is
Innoplexus AG,
Frankfurter Str. 27, 65760 Eschborn, Germany
info@curia.app (vedi il nostro impressum: www.curia.app/impressum).

Innoplexus is a German company.

Il responsabile aziendale della protezione dei dati di Innoplexus può essere contattato all'indirizzo sopra indicato, alla Datenschutzabteilung o all'indirizzo compliance@innoplexus.com.

(3) When you contact us via email or a contact form, we will store your email address and, if you have provided it, your name and telephone number to answer your questions. We delete the data arising in this connection after storage is no longer required or – in the case of legal storage obligations – restrict processing.

(4) If we use contracted service providers for individual functions of our offer or wish to use your data for advertising purposes, we will inform you in detail about the respective processes below. We will also state the specified criteria for the storage period.

(5) IMPORTANT NOTICE:

You are under no legal duty to provide us with any personal data. However, we do need your personal data in order to provide you with the Service. You hereby acknowledge and agree that you are providing us with such information at your own free will.

(6) We will not collect any personal data from you or related to you without your approval, which is obtained, inter alia, through your active use of and interaction with the Service, your acceptance of this Privacy Policy and your acceptance of our Terms of Use.

(7) This Privacy Policy is incorporated by reference to our Terms of Use, which are available at the following link: Terms of Use.

II. The purpose for which we collect your personal data 

We collect personal data for the purposes described in this Privacy Policy and in order to –

1. provide and operate the Service, and to provide our users with information to use as applicable;
2. study the information for personalized services and notifications;
3. use on an aggregated, statistical basis to discover patterns and anomalies;
4. enable us to further develop, customize and improve the Service based on users’ common preferences, uses, attributes and anonymized data;
5. enable us to provide our users with a better user experience, with more relevant and accurate information, services, third party services, features and functionalities, statistical and research purposes, and
6. deliver advertising and other commercial or sponsored content from our authorized partners which may be valuable to our users, etc.

III. Legal basis for collecting and using personal data

Raccogliamo, elaboriamo e utilizziamo i vostri dati personali sulla base di almeno una delle seguenti basi giuridiche:

1. Your consent – We ask for your consent to process your data for specific purposes, including by your acceptance of this Privacy Policy, and you have the right to withdraw your consent at any time.
2. When Providing the Service and performing our agreement – We collect and process your personal data in order to provide you with the Service, following your acceptance of this Privacy Policy; to maintain and improve our Services; to develop new services and features for our users; and to personalize the Services in order to provide our users with an enhanced user experience. 
3. Our Legitimate interests – We process your data for our legitimate interests while applying appropriate safeguards to protect your privacy. For example, we may process your data for detecting, preventing, or otherwise addressing fraud, abuse, security, usability, functionality or technical issues with the Service, protecting against harm to the rights, property or safety of our properties, or our users, or the public as required or permitted by applicable law, exercising and enforcing rights and claims, including investigation of potential violations of this Privacy Policy; in order to comply with and fulfil our duties under applicable law, regulation, guidelines, industry standards and contractual requirements, legal process or governmental request, as well as our Terms of Use.

IV. Processing of personal data when using CURIA and which data we may collect on users

When downloading CURIA, the required information is transferred to the App Store or Google Play store, in particular user name, email address, time of download and the individual device ID number and is processed pursuant to Apple’s privacy policy or Play store privacy policy, linked here: https://www.apple.com/legal/privacy/en-ww/ and https://policies.google.com/privacy?hl=en-US. We have no influence on this data collection and are not responsible for it. We process the data only to the extent necessary for downloading CURIA to your mobile device.

Con la disinstallazione, il trattamento attivo dei vostri dati personali viene interrotto. 30 months from the date of uninstalling, the data will be deleted due to the discontinuation of purpose, unless we are subject to any statutory retention obligations. We accept the loss of purpose after such period because we assume that it is no longer likely that you will use our services again after such period. However, in order to give you the opportunity to restore your profile after a shorter period of time, e.g. because you deleted the app earlier for lack of necessity, we temporarily store the data for you.

Tuttavia, se desiderate revocare il vostro consenso e non solo sospenderne temporaneamente l'utilizzo, potete farlo cliccando sul pulsante "Elimina tutti i miei dati personali".

§1 Quando si utilizza CURIA, si raccolgono i seguenti file di log:

– IP address, also in the API logs
– Date and time of the request
– Content of the request (concrete page, concrete API endpoint)
– Access Status/HTTP Status Code
– Amount of data transferred in each case
– End device from which the request comes
- User Agent (agente utente)
– Operating system and its interface
– Language and version of the User Agent.

On the one hand, this data is mandatory for us from a technical point of view in order to offer the various functions of CURIA as well as to ensure the stability and security of CURIA and, on the other hand, to enable a comfortable use of the Service and functions.

Gli indirizzi IP nei file di log vengono cancellati dopo 14 giorni.

§2 Furthermore, when CURIA is started for the first time, we assign a unique installation ID for each installation, which is stored on an Innoplexus server. It contains no personal data. If you delete CURIA and then reinstall it, a new installation ID will be generated. This will be assigned so that a connection to the Innoplexus server can be established when starting CURIA on the mobile device to check if the version of CURIA you are using is still up to date. CURIA can be updated to implement new features or to ensure data security, fix bugs, etc.

§3 You must register with your first and last name, e-mail address and telephone number in order to take advantage of CURIA’s free services. This creates a contract of use between Innoplexus and you and you will receive your own user account. We use this personal data for the execution of this contract. The data you provide will be transferred to the Google Cloud and stored on a server in Germany. The Google Cloud is operated by Google Inc., 1600 Amphitheatre Parkway, Mountain View, CA 94043 USA. We have concluded so-called standard contractual clauses with Google, which guarantee an appropriate level of data protection.

Alternatively, you can log in using your Google user account. For this we collect the following personal data:

– First and Last Name
- Indirizzo e-mail

To what extent the personal data disclosed by you through the subsequent use of CURIA will be processed by Google, please refer to Google’s privacy policy.

You can delete your account at any time by clicking the “Delete my personal data” button within CURIA. The personal data processed by us will be deleted or blocked or restricted in their processing. The data stored by us will be deleted as soon as the purpose of storage no longer applies and the deletion is not contrary to any legal storage or other obligations.

§4 Se desiderate ricevere informazioni sulle possibili opzioni terapeutiche, sui medici e sugli studi clinici, potete compilare il questionario da noi fornito con domande sul vostro quadro clinico. Verranno richiesti parametri specifici per il cancro, come ad esempio informazioni sulle mutazioni genetiche, lo stato del rispettivo cancro, ecc. Le informazioni da voi fornite sono volontarie e hanno il solo scopo di consentirci di fornirvi informazioni.

You are free to revoke your consent at any time with effect for the future without giving reasons. This does not affect the legality of the processing carried out up to that point.

You also have the option of registering for participation in clinical studies. To do so, you must provide the following information: Information about the study you wish to register for, your location, contact information (telephone number or e-mail address), information about your medical inclusion and exclusion criteria. The provision of this personal data is voluntary. The purpose of the processing is to carry out the selection procedure. You are free at any time to revoke your consent with effect for the future without giving reasons by selecting the option “Delete all my personal data” in the app. This gives you the option to delete all personal data. After clicking on the “Delete all my personal data” option, you will receive an automated email confirming the deletion of your data. This does not affect the lawfulness of the processing that took place until the revocation.

I questionari compilati e le richieste per la partecipazione a studi clinici sono trasferiti su Google Cloud e memorizzati su un server in Germania. Google Cloud è gestito da Google Inc, 1600 Amphitheatre Parkway, Mountain View, CA 94043 USA. Abbiamo concordato con Google le cosiddette clausole contrattuali standard, che garantiscono un livello appropriato di protezione dei dati. Se soddisfate tutti i criteri di idoneità per la richiesta allo studio clinico, i dati personali che avete fornito saranno trasferiti al dashboard interno di Innoplexus per gli studi clinici. Questi dati sono accessibili al team dell'app CURIA, che è in parte basato in India e fa parte di Innoplexus Pune. A tal proposito, un livello appropriato di protezione dei dati è assicurato dalla conclusione di clausole contrattuali standard.

§ 5 Utilizziamo Google Analytics e Google Firebase, entrambi i servizi forniti da Google Inc, 1600 Amphitheatre Parkway, Mountain View, CA 94043 USA, per:

1. Analizzare l'uso generale di CURIA, in particolare le installazioni/disinstallazioni dell’app, i questionari della malattia, le attività di ricerca delle terapie e l'arruolamento negli studi clinici, l'avvio di una sessione e la dimenticanza di una password (Google Analytics).
2. Raccogliere dati di diagnostica per garantire la stabilità tecnica dell'app (Google Firebase).

Your IP address will be processed. We use the anonymization function of Google, whereby the IP address is shortened in the EU/EEA for anonymization purposes and is transmitted in shortened and anonymized form to Google servers in the USA. We use the anonymized reports on the general use of CURIA created by Google and transmitted to us in order to continuously improve our service and increase the user-friendliness of CURIA. The reports we receive contain no personal data.

I dati vengono elaborati negli Stati Uniti, per cui abbiamo concordato con Google le cosiddette clausole contrattuali standard, che garantiscono un livello appropriato di protezione dei dati.

I dati vengono cancellati quando non sono più necessari ai fini della loro raccolta perché è stata disattivata la possibilità di raccogliere e trattare ulteriori informazioni sulla diagnostica e sul comportamento d'uso nella CURIA App.

L'utente è libero di revocare il proprio consenso in qualsiasi momento con effetto per il futuro senza doverne indicare i motivi. Ciò non pregiudica la legalità del trattamento effettuato fino a quel momento.

V. Processing of personal data and which data we may collect when using the Cancer Twin feature 

Un Gemello Curia è un paziente della community Curia la cui diagnosi di cancro è simile alla vostra. I Gemelli Curia possono usare una chat privata per condividere esperienze. La chat è basata sulla tecnologia blockchain di Ethereum. L'obiettivo della nuova funzionalità è quello di mettere in contatto pazienti oncologici.

§1 As part of a matching process, you as a user will be matched together with up to 3 other cancer patients, Cancer Twins, who have activated this feature and have a similar profile. In order to find a matching Cancer Twin, the following parameters are compared, which we collect from you to carry out the matching process:

- Tipologia di cancro
- Stadio
- Recettori ormonali
- Marcatori genetici
- Sesso
– Age
– Other health data, depending on cancer type
- Distanza

Naturally, a CURIA user to whom your profile is proposed as a potential Cancer Twin can infer from such proposal that the parameters you provided correspond to the parameters provided by such user.

The purpose of this feature is to bring together cancer patients and promote the exchange of experiences and information between patients who have a similar cancer diagnosis. You are free to revoke your consent at any time without giving reasons with effect for the future. This does not affect the legality of the processing carried out up to that point.

Se la data dell'ultimo accesso risale a più di 6 mesi fa, il profilo corrispondente viene automaticamente rimosso dal database e non può più essere abbinato a nuovi Gemelli Curia.

§2 Cancer Twins can exchange information in a chat integrated in CURIA. Patients must register for the feature and select a nickname before being matched with their Cancer Twin(s). This nickname can be edited in the settings. When users exchange messages via the built-in chat, the end-to-end encrypted messages are stored on a public Ethereum blockchain.

A questo scopo, Innoplexus ha predisposto un nodo che funge da intermediario per inoltrare il messaggio di chat alla blockchain di Ethereum. Prima che un messaggio venga trasmesso e memorizzato sulla blockchain, viene completamente criptato localmente sul dispositivo mobile del paziente utilizzando la crittografia end-to-end. La chiave privata richiesta per crittografare il messaggio viene conservata sul vostro dispositivo fisico per tutto il tempo e non viene condivisa con Innoplexus o altri utenti. Solo quando il messaggio crittografato viene ricevuto dal Gemello Curia, questo messaggio viene decifrato con una chiave corrispondente sul dispositivo mobile del Gemello Curia che deve ricevere il messaggio.

The purpose of this chat function is to enable the exchange of information and experiences in a simple way and without big hurdles, offering at the same time a high level of security. You are free to revoke your consent at any time without giving reasons with effect for the future. This does not affect the legality of the processing carried out up to that point.

In this case, the chat associated with your profile will be deleted from your device. In such case, the private key is lost and no one can decrypt the data, not even CURIA or Innoplexus. The nickname and chat content on the device of the Cancer Twin with whom messages were exchanged also disappear. Besides this, your profile will be automatically removed from the Cancer Twin database if the last login date is more than 6 months ago.

La posizione del server non può generalmente essere assegnata a un paese specifico a causa dell'infrastruttura blockchain (Public Ethereum blockchain), ma criptando il contenuto della chat con un metodo di crittografia a chiave pubblica, i dati sono altamente pseudonimizzati per tutti gli altri, in modo che un trasferimento di dati a un paese terzo possa essere considerato "sicuro".

I metadati hashed non sono memorizzati sulla blockchain di Ethereum.

VI. Where do we store personal data?

Other than where otherwise described above, the data you provide will be transferred to Google Cloud and stored on a server in Germany. The Google Cloud is operated by Google Inc., 1600 Amphitheatre Parkway, Mountain View, CA 94043 USA. We have concluded so-called standard contractual clauses with Google, which guarantee an appropriate level of data protection.

For additional information with respect to Google Cloud privacy practices you may visit the following link:

https://cloud.google.com/terms/cloud-privacy-notice

L'utente riconosce e acconsente al luogo di conservazione e al trasferimento delle informazioni come descritto nella presente Informativa sulla privacy, compreso il trasferimento al di fuori di Israele.

VII. Sharing data with third parties

Non condivideremo i dati personali che raccogliamo su di voi con terze parti, tranne nei casi seguenti:

1. to provide the Service, at your request and choice, including specific features you elect to use;
2. per soddisfare qualsiasi requisito previsto da leggi, regolamenti, procedimenti legali o richieste governative;
3. to enforce this Privacy Policy and/or our Terms of Use, including investigation of potential violations thereof;
4. to detect, prevent, or otherwise address fraud, security or technical issues;
5. to respond to your support requests;
6. to respond to claims that any content available on the Service violates the rights of third-parties;
7. per rispondere a richieste di informazioni di contatto (ad es. nome, indirizzo e-mail, ecc.) di terzi pubblicate o trasmesse senza il loro consenso o come forma di molestia;
8. per proteggere i diritti, la proprietà o la sicurezza personale di noi, dei nostri utenti o del pubblico in generale;
9. nel caso in cui Innoplexus subisca un cambiamento di controllo, anche attraverso una fusione, un'acquisizione o un acquisto di tutti o sostanzialmente tutti i suoi beni;
10. to collect, hold use and/or manage your personal information through our third party service providers, as reasonable for business purposes (including for purposes of providing and promoting the Service) which may be located outside of Israel, as described below;
11. to provide advertising and other commercial or sponsored content from our partners which may be valuable to you or
12. previa approvazione esplicita dell'utente prima della divulgazione.

A scanso di equivoci, possiamo trasferire e divulgare a terzi o utilizzare in altro modo le informazioni non personali a nostra discrezione, nel rispetto delle disposizioni della presente Informativa sulla privacy.

VIII. Transfer of your personal data – third party software/service

We may transfer and share your personal data with our selected partners and service providers who assist us with various aspects of our operation and business. These include:

-Storage and processing services (such as Google LLC),
-Web and app analytics services (such as Google LLC)

These companies are authorized to use your personal data only as necessary to provide these services to us and not for their own promotional purposes. You hereby acknowledge and consent to such sharing and transfer of your data, including transferring outside of Israel. We do not sell your personal data to third parties.

IX. Access to personal data and modification of personal data

If you wish, we can provide you all your personal data which you provided to us. To do so, please contact us at info@curia.app.

If for any reason you wish to update, modify or revise your personal data that is stored with us and identifies you, you may do so on the Service by editing your information on your account.

X. Security 

We implement measures to secure the Service and  your personal data. For example, personal data is hosted on Google Cloud servers, which provide advanced security features. However, such measures do not provide absolute information security and we do not and cannot guarantee that unauthorized access will never occur.

We recommend using the strongest password combination available on your mobile device to protect unauthorized access to your mobile device.

XI. Direct Marketing 

You acknowledge and agree that we may use your contact details for the purpose of informing you regarding our products and services and for sending you other marketing material, such as for example relevant medical data, updates and news, including as part of the Service as well as via the e-mail address or phone number you have provided.

We may also contact you as part of the Service for the purpose of informing you of treatments or clinical trials that might be relevant to you.

None of the above information (or any other information which we may provide to you) shall be considered as medical advice (see also our Terms of Use for more details).

You may withdraw your consent by notifying us to our following email address: info@curia.app.

We may also contact you with information regarding our Service. For example, we may notify you (through any of the means available to us) of changes or updates to our Service, maintenance, etc. You cannot opt-out of receive such service notifications.

XII. Minors

To use our Service, you must be over 18 years old. We do not knowingly collect personal data from persons under the age of 18, unless it was provided by the user’s family member who is over the age of 18 and has the right to provide personal data on the minor’s behalf. We reserve the right to request proof of age at any stage so that we can verify that minors under 18 years old are not using the Service. In the event that we become aware of a person under 18 years old using the Service, we reserve the right to block such user’s access to the Service.

XIII. Changes to this Privacy Policy 

We reserve the right to change this Privacy Policy at any time, so we recommend you to re-visit this page frequently.

We will provide notice of substantial changes of this Privacy Policy on the Service and/or we will send you notice of such changes. Such substantial changes will take effect seven (7) days after such notice was provided on any of the above mentioned methods. Otherwise, all other changes to this Privacy Policy are effective as of the stated “Last Revised” date, and your continued use of the Service after the Last Revised date will constitute acceptance of and agreement to be bound by such changes. Please note that in the event that this Privacy Policy should be amended to comply with any legal requirements, such amendments may take effect immediately and without any prior notice, as may be required by law.

XIV. Questions, comments and complaints

In caso di domande, commenti o reclami, o se ritenete che i vostri dati personali siano stati utilizzati in modo improprio, vi preghiamo di contattarci a info@curia.app. Faremo del nostro meglio per risolvere il problema in modo tempestivo. Potremmo chiedervi di fornirci alcune informazioni personali per potervi identificare.

Last updated: 4th Jan 2022